We received such great news today about Enoch's eye that recently had a piece of metal slice through it and lodge itself in the back of his eye. After having emergency surgery, we were not exactly sure what the outcome would be. The doctor said it was a miracle that he was not blind from the accident. Even though the bubble in his eye is still present (it usually goes away after only 4-5 days), his vision is now 20/30!!! Still praying for a complete recovery, but so grateful for the healing that he has been blessed with.
Anyone that imagines that bliss is normal is going to waste a lot of time running around shouting that he's been robbed. Life is like an old time rail journey...delays, sidetracks, smoke, dust, cinders, and jolts, interspersed only occasionally by beautiful vistas and thrilling bursts of speed. The trick is to thank the Lord for letting you have the ride.--Gordon B. Hinckley
Tuesday, June 8, 2021
Thursday, May 20, 2021
Enoch's Eye Accident
Monday afternoon I was just finishing up my shift at the feed store when Enoch came in from working in the yard as he had a piece of metal hit him in the eye. Initially I just thought it was something that he would blink out, but because he could still feel it in his eye, and it started bleeding, we decided we had better get it checked out. We originally took him to Portneuf hospital where they did an eye exam and a then CT scan of his eye. They told us the results from the CT would be back in about a half an hour. We knew something was really wrong when they returned to the room in under five minutes and told us that we needed to get in our car and drive as fast as we could to Idaho Falls (about another 45 minutes) to see a retina specialist. They were very concerned as the piece of metal had cut through his eye and lodged itself in the back of his eye. After a quick examination with Dr. Thompson at Premiere Eye Care we were immediately sent over to EIRMC hospital for an emergency surgery. The doctor said it was a miracle that Enoch was not blind and also a miracle that he still had 20/30 vision when he got to his office! One hour later Enoch was whisked away for a two hour surgery where they stitched up the original cut and put three holes in the back part of his eye to be able to remove the metal piece and then they stitched up that area. The doctor said that the surgery went as well as could be expected and he felt very inspired through the surgery process. Monday night and most of Tuesday we spent in the hospital until his follow up appointment that afternoon. Enoch is in a lot of pain and has a very hard time getting comfortable because he cannot lay on his back until the bubble goes away in his eye (about four days). The doctor said we are not out of the woods yet with our biggest risk factors being infection and loss of eyesight. We will know a lot more when he returns to his follow-up appointment in a week. One of Enoch's first questions was whether or not he could still go jogging. The doctors reply was an emphatic, "NO!" His options for the next month will be riding the stationary bike and resting. Enoch's missionary homecoming report is scheduled for this Sunday. When we ask the doctor if it would still be o.k. to move forward with that he said that he would be fine to do that. So for anyone who is wondering Enoch is still scheduled to speak on Sunday morning at 9. Of course the trip could not be complete without me getting pulled over for going 75 in a 65 on the way home. Luckily, the police officer took pity on us when he took a look at Enoch's eye, told me we had enough to worry about, and just gave me a warning. We are so incredibly grateful for God's watchful eye over our family once again and we feel so blessed to have had such amazing doctors that were able to help us so quickly and skillfully.
Friday, October 24, 2014
Larry & Enoch Hospital
Two weeks from tomorrow I found myself at the ER with two of my family members. I had spent a very peaceful week at my dad's working on my book, Jill's Hope. I got home late Friday night to find a very clean and orderly house (which always makes me so happy). Larry and I had a disagreement on Fri. night and were up late hashing things out. He then woke up early to go get straw for the store. After a 30 min. drive to go pick it up, he was very discouraged to learn that it was moldy. He came back to Malad and hustled to make it to Enoch's football game that he was coaching in Pocatello. He was tense the whole way there because he was worried about being late.
When we pulled into the parking lot a few minutes late he started having stomach pains. As he lay there on the grass moaning while warm-ups were going on, he insisted that it must be the flu (I knew better, however, because I saw the color in his face change and I have learned the signs of a pancreatic attack). He received a priesthood blessing. Between the blessing and his adrenalin he was able to coach the entire game.
In the 4th quarter, Enoch took a really hard hit and suffered a severe concussion. He was mostly unconscious for the rest of the game that we ended up losing in the last 9 seconds of the game. At first the sports medicine doctor recommended that we just keep an eye on him for 3 hrs. and take him to the hospital if symptoms got worse. When the game ended and he was still unconscious, he recommended that we take him to the hospital for a CT.
Larry carried Enoch to the car and gave him a blessing. I drove him to the hospital and Larry got Enoch settled at the hospital after which he collapsed in pain and went into a full-blown pancreatic attack. I had both of them in the ER across the hall from each other. One of the nurses passing by ask me, "what the hell happened to my family". I told him that it was complicated.
Luckily, Enoch's CT checked out to be ok. and he was able to leave the hospital that night. It took him about 3 hours to regain consciousness and he slowly started talking and walking again. We then went to my friend, Jen's house, that is a 5 minute drive from the hospital. After getting Enoch settled, I spent until 10:00 at night running around getting us some clothes for the night (Enoch was still in sweaty gross football clothes) and finally finding a pharmacy that was open so that I could pick up his meds. Even though I was exhausted, sleep did not come easy as stress was once again getting the best of me.
Larry stayed the night in the hospital. They were finally able to get his pain under at about 2 in the morning. As always, he was very anxious to get home, but later regretted not staying another night or two in the hospital as he had a pretty rough recovery.
When we got home, I spent a good 4 days in a major depression. I could not believe that I was dealing with pancreatitis, AGAIN (we had made it almost four months without an attack)! In addition to the worry I felt about Larry being sick, I was just sick about Enoch's head injury.
It has been almost two weeks and he still has some dizziness and nausea. The Monday after the accident, he rode his bike to work and crashed on the gravel. Grrrrr! After experiencing and learning more about concussions I realized that he probably shouldn't have been working, riding a bike and should have taken a break from school. He has learned to take more time off and seems to be on the mend.
We played the same team last Saturday for the play-off game to determine who was going to play at the mini-dome. They kicked our trash (30-0). Our boys did not show up to play. I suspect that part of it was from the events of the prior week--3 of their teammates, including Enoch ended up at the ER for various reasons. The other 2 boys were cleared to play for the game, but Enoch was still recovering from his concussion. This was the first year that this team has ever beaten us in this league in the 3 years that we have been playing. I had such mixed feelings about the loss.
Larry and the other coaches have worked so hard to build a winning team and it was sad to see them end the season on such a downer. It was very hard to watch Enoch pace the sidelines knowing there was little he could do to help his team. He has been the highest scorer for the team this season and it really hurt our team to have him out for the game. I was relieved, however, that Enoch was not going to push himself to try and be ready for the play-off game if they would have won. I don't think he would have been ready to play and it would have been very depressing for him to have to pace the sidelines again.
After I brought the boys home from the hospital, my dear friend Madelin brought our family dinner for a few nights so that I could focus on taking care of my injured family. Unfortunately, depression got the best of me. My brain literally froze and refused to know what to do to help them. I was not able to cope as a nurse for my family again. I was burnt out!
I felt so guilty not being able to help Larry as he suffered. He slept in his office downstairs and just endured 4 days of trying to recover. On about the 3rd day Larry's Aunt called to see how we were doing. I poured my heart out to her about how hard things were. As I shared how difficult this was on our marriage, it was very comforting to me when she shared some stories from their own family and the statistics that a lot of couples end up divorced during crises because it is so hard. It made me feel so much better to just realize that this was normal.
The couple of things that we learned from this experience were that Larry needs to carry his anit-inflammatories, digestive enzymes and pain meds with him everywhere! I learned that I need to create a Stage 1 diet, Stage 2 diet etc. as a quick reference sheet for after he has had an attack. That way, if my brain does freeze, or I have to call someone for help they will know how to help.
It is now 2:30 in the morning and sleep still alludes me. I will spend my time writing down ideas on how people can help.
Thursday, March 27, 2014
Our Toxic Mold Experience
Following is a timeline of events that we have been through and continue to go through in relation to our exposure to toxic mold. We have experienced and learned a lot and we have a lot of work ahead of us to regain our families health. The best advice I have been given through all of this is to FOCUS ON HEALING! I have to remind myself of this daily.
Larry tested positive for tricothecenes, the most toxic mycotoxin there is. Tricothecenes are produced by common species of mold such as aspergillus, penicillium or stachybotrys (black mold) and they can be inhaled or ingested. Our rental home had tested positive for aspergillus and pencillium.
December 28, 2013
Our 4 month break from pancreatitis is short lived and Larry returns to the hospital from another attack after a family Christmas party. He is lying there in the ER in horrific pain and I keep asking the nurse when the doctor is going to be there. He replies that the doctor legally has 30 min. to respond to an ER call. I am thinking where can you go in little old Malad that you couldn't be there in 10 min. or under. The doctor comes walking in 30 min. later and says, "Are you going to listen to me this time? Have you had enough?" At that moment I realized that this was the doctor that had been emotionally abusive to him at our August visit. Larry sat up and said, "Listen lady are you going to help me or am I going to walk out of here?" As calm as I could speak from being so appalled I said, "this is not the time or place for that, please get his pain under control and we will talk about this out in the hall."
The pressures we felt to get his gall bladder out were relentless--work, church, friends and medical workers, but I KNEW that his gall bladder was not the cause of his pancreatitis and still NOONE would look at my folder full of documentation!!!
We were essentially held hostage at the hospital for a week waiting for Larry to be well enough to have his gall bladder taken out. I ask him several times if he wanted to just walk and not have the operation, but he felt SO much pressure that he felt it was something that he had to do. They say that his gall bladder had sludge in it and were certain that they had taken care of the problem. We were both somewhat optimistic that maybe, just maybe this would fix the problem.
March 2, 2014
The day after returning home from our son's state wrestling tournament Larry has another attack and spends another 4 or 5 days in the hospital. After being released, he goes back into the hospital gain because his pain flares up again. We are both VERY DISCOURAGED!
While he is in the hospital, my sister-in-law comes over and we clean out all processed food out of our refrigerator. With each hospital stay I have cleaned up our eating more and more, but it has been a VERY difficult process with a newborn baby and still trying to get settled from our moved.
March 26, 2014
After much experience, research, testing and talking to experts I have come to the following conclusions:
1. We were poisoned by toxic mold.
2. We very likely have a cross-contamination issue that continues to affect us at some level. One of the doctors I spoke with was adamant that we needed to get rid of all of our things, but this seems like such a drastic step to take when there are still so many unanswered questions (what is the ERMI level in our home now) and we are struggling so much financially.
I really liked Dr. Mary Short-Ray's advice to hepa vacuum and wipe down all of our belongings with a mold killing solution, especially the wood, and then buy air filters (available on toxic-mold-syndrome.com website) that should help take most of the mycotoxins out of the air.
3. Larry, and possibly several of us, suffer from "Mold Illness". Many patients “don’t look that bad.” But those people are struggling with an illness that causes them to lose their quality of life. These patients don’t know that they have a genetic susceptibility to develop this illness based on their immune response genes (HLA–DR). They don’t know that the inflammation that makes them ill comes from within: it is due to an assault by their own unregulated innate immune system responses. Because of exposure to the interior environment of a water-damaged building, these patients will have a series of abnormalities in innate immune responses that will not self heal; will not abate in severity [actually increase!] and will continue to cause illness from blood- and tissue- based inflammation as well as alteration of the regulation of fundamental genomic activity. At the core of why one person becomes ill from this exposure and another doesn’t is their gene susceptibility (or predisposition) – what is built into their DNA. Every person’s innate immune system is personal and genetically coded – thus, it works differently for each of us. When the body is faced with a foreign substance, it immediately begins to process that substance – recognize it, determine if it is good or bad, a friend or a foe, and throw it into the antigen presenting machinery that will normally generate an effective antibody response. If the body determines the substance is a foe, it will develop antibodies to bind these substances, called antigens. Normally the next time a non-mold susceptible person walks into a WDB, his antibodies will target the antigen and clear it out fast. That protection from so-called acquired immune responses just doesn’t happen in mold patients.
The genetics are clear: occurrence of specific HLA types are found in about 25% of the population. It is in these people that we find the sickened ones almost always (nothing is 100% in biology). In these people, the antigens stay in the body, and our own defenses bombard our body in response to those antigens. What you now have is a person who is defenseless against new exposures and is suffering daily from inflammation.
It is a vicious cycle – the foreign antigens (substances) stay in the body, causing the immune system to constantly fight back. This causes so much inflammation in the body that it leads to chronic illness, and the occurrence of many symptoms. Our entire being suffers from friendly fire from our own innate immune system."--Dr. Shoemaker
4. The most critical thing that we need to start doing immediately is to get on binders (see toxic-mold-syndrome.com). These pull the toxins out of your body and from what I've been told things may get worse before they get better. I've been told that the average healing time is 8 mos. to a year.
5. We have got to practice clean eating continually and specifically nourish the pancreas and digestive tract. to avoid future pancreatic attacks. The most helpful cookbook I have found to cook from is called "Nourishing Traditions" by Sally Fallon. I HIGHLY recommend this book. At some point we may go on the "mold killing diet".
6. We are not going to get the help for toxic mold exposure that we need from the mainstream medical community. We will have to go to an environmental MD that specializes in mold poisoning. There are only a handful of them in the United States and they are very hard to get into. Larry has an appointment with Dr. Janette Hope MD and mold survivor in Santa Barbara CA at the end of April.
Ideally we would all be able to visit Dr. Hope, but with our shortage of finances Larry has to be the priority.
Some of us continue to have sinus issues, vision problems, and brain fog.
7. Our whole family needs to be taking the herbal supplement, protandim (see abcliveit.com for more info.). Protandim has been clinically proven to reduce oxidative stress by an average of 40% after only 30 days. Oxidative stress is a huge component of damage done by toxic molds (see scientific article by Dr. Janette Hope at http://www.hindawi.com/journals/tswj/2013/767482). Some of the members of our family that fared the best through our mold exposure were religiously on protandim because of other medical conditions that they had. I regret not having them on it sooner.
8. This experience may cost us our livelihood. We own the local feed store and grainery and my husband is constantly working in grain dust that is full of mycotoxins. For now he will wear a mask.
Tests We Have Had Done
1. ERMI (emsl.com) about $300 This is the test we did at our rental house to confirm the presence of toxic molds.
ERMI is the Environmental Relative Moldiness Index – the combination of EPA research, powerful PCR technology, and a new method to screen homes for mold.
The ERMI test involves the analysis of a single sample of dust from a home. The sample is analyzed using mold-specific quantitative polymerase chain reaction (MSQPCR), a highly specific DNA-based method for quantifying mold species. A simple algorithm is used to calculate a ratio of water damage-related species to common indoor molds and the resulting score is called the Environmental Relative Moldiness Index or ERMI.
2. ehaplabs.com this lab tests for symptoms of mold exposure and mold sickness in the human body. The mycotoxin test that we had done was about $700. You can submit this testing to insurance as long as you have them include the appropriate codes.
If your doctor is willing they can sign up with Real Time Labs and order the tests for you through the doctors office. If they do this and you do a repeat tests it is only $200 instead of $700. The lab has a structure in place to train open minded doctors to treat this condition.
3. Visual Contrast Sensitivity (VCS)--available to take at survivingmold.com
Pricing:
1 Test: $15
4 Tests: $40
10 Tests: $75
50 Tests: $250
The VCS APTitude is designed to help identify contrast vision loss from exposure to a variety of environmental sources of illnesses.
I was very skeptical about this test until some of our family had taken it and I have received the thumbs up from the doctors that I have visited with. I really expected most of our family to fail it, except for Dallin, who never seemed to have any toxic mold illness. So far our results are as follows:
2. Jill--failed both
3. Enoch--failed both
4. Dallin--passed both!
This test is designed so that as you start to heal and get the toxins out of your body, your vision will improve! This gives us a fairly inexpensive way to track progress for our whole family.
If you have an unexplained illness, you should consider toxic mold poisoning! To learn more go to the references below:
Other Recommended Links, Websites, & Books
1. www.toxic-black-mold-syndrome.com This is Dr. Mary Beth Short Ray M.S., D.O.'s website. She is the author of "Surviving Toxic Black Mold Syndrome" which I highly recommend. This book was specifically written for doctors. She is a doctor who has been through toxic mold poisoning.
Dr. Mary Ray also does phone consultations for $50 per half hour. I have had a couple of them with her and found them to be well worth the money. Most environmental drs. charge anywhere from $250--$500/hr.
2. momsaware.org This is Andre Fabre's website. This is the website that I originally came to when I started learning about toxic mold. They had 9 children and left everything behind because they were so sick and had been exposed to toxic black mold for several years. She has been a good friend through this whole experience. I would encourage you to read their story and spend time looking at her website. She has some EXCELLENT info. on there.
3. Following is a link to a medical journal article written by Dr. Janette Hope, President of the American Academy of Environmental Medicine. This is an excellent well documented article that is at least worth skimming through. http://www.hindawi.com/journals/tswj/2013/767482/
4. sponauglewellness.com
This is a detox center in Clearwater, Florida that was recommended to me by Dr. Baker, from Pocatello, who also went through toxic mold poisoning. There are some very interesting testimonials on this website, but they don't show any pricing which makes me a little nervous.
5. ehcd.com
This is the Environmental Health Center in Dallis, TX where Dr. Baker also suggested that we go after going to Dr. Sponagle in Florida. Dr. Mary Ray also recommended that we go here and visit Dr. William Rea. There protocol looks very promising. Again, just wondering how much they charge???
6. survivingmold.com. This is Dr. Richie Shoemaker's website. He is one of the leading doctors in treating toxic mold illness. This website contains a wealth of information.
7. Jack D. Thrasher, PhD (thrasher.org) is an immunotoxicologist who has assisted hundreds of individuals injured by toxic chemicals and molds. Dr. Thrasher has been a consultant and expert witness for cases involving environmental toxicology and immunotoxicology. He has been very helpful to us in putting togetther all of the puzzle pieces.
8. Mold: The War Within by Kurt & Lee Ann Billings--Lessons Learned from Katrina
This is just the tip of the iceberg of everything that I have learned over the past 10 months. I would love to hear your experiences and feedback after reading this. In the meantime, I am going to keep putting one foot in front of the other and FOCUS ON HEALING!





