Anyone that imagines that bliss is normal is going to waste a lot of time running around shouting that he's been robbed. Life is like an old time rail journey...delays, sidetracks, smoke, dust, cinders, and jolts, interspersed only occasionally by beautiful vistas and thrilling bursts of speed. The trick is to thank the Lord for letting you have the ride.--Gordon B. Hinckley
Thursday, October 6, 2011
Rachel's Dr. Visit Regarding A-T Symptoms
I took Rachel to the Pocatello Children's Clinic today because of concerns that I have about her. She has started to wobble quite a bit, she doesn't seem to be gaining weight, tires quickly, and she has been falling off of things more than I believe is normal. Of course I am paranoid about her having A-T and I need to put the issue to rest. The doctor told me that I had reason to be concerned, but I didn't need to get too worried until we had more conclusive evidence. Her lack of weight gain was a concern however, since she was 16 months old and only weighing in at 17 lbs. He then took an alpha-fetoprotein (AFP) level test to see if hers was still coming in high. He told me that no news was good news, so if I didn't hear from him in a few days to assume that everything was normal.
Labels:
Ataxia-Telangiectasia,
Rachel's Story
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