Post on Chronic Pancreatitis & TP/IAT Support Group

My husband started having acute pancreatitis in 2013. He has several attacks between 2013 up until about 2019 at which time he got about a year and a half reprieve from them. Last Oct. he started having major stomach pains, that we thought were indigestion issues, but come to find out a couple of months ago his pancreas looks like it has been ripped out and beat with a baseball bat. After losing 40 lbs and finally figuring out what the problem was, he has been on an NJ tube for about 6 weeks and strong antibiotics for the past three weeks to prevent sepsis. He also had surgery about 3 weeks ago to put a stent in his pancreas and try to recreate his duct. He has been able to tolerate puddings, jellos, and soups most of the time but he made the mistake of eating a protein bar last Sunday which sent him into a horrible attack. He had a CT scan this morning and will meet with the GI Dr and infectious disease Dr. later this week to see if his pancreas has made any progress. Where does this all end? Has anyone had any healing when they have gotten to this state? When do you finally consider it chronic pancreatitis? His grandmother died of pancreatic cancer at age 49 and she was 65 lbs

My husband is 53. I'm sure that he would have followed a similar path had it not been for intervention from modern medicine.

Joy & Spiritual Survival

What an excellent message on rising above the trials of this life and finding JOY in our lives!!!

 

Surgery Postponed

Today did not go as planned. After consulting with the doctor we decided to put of having Larry's endoscopy and procedure to have the stint put in until next Wed. for a few reasons--it gives Larry's pancreas more time to heal and that is when the doctor has his best team available to do the procedure. As frustrating as this decision was, we felt like it was the best decision given all of our other options. The process is likely going to be a low slower than we would like. We both need optimism, hope, and probably a good night's sleep as it has been a long day.

To say that I was LIVID that they put off this surgery after he was already in his hospital gown, on an IV, and we had made all of the necessary preparations to get to the appointment, and have to drive 2 hours each way to get there, is an understatement! I was extremely frustrated that they couldn't have just had this conversation with us over the phone instead of having to re-do our stress all over again the following week (grrrrr!). In the end, I believe it was the best decision, just wish there could have been better communication.