So proud of Ben for being brave enough to undergo the surgery to have a feeding tube placed yesterday. With the disease he has, ataxia-telangiectasia, it is very difficult for him to swallow properly and he is not growing like he should. Even though it was a hard decision to make and the recovery has been painful I know it will be worth it in the end (hey! and he has had unlimited electronic time at the hospital) so it will all be worth it!!!
Anyone that imagines that bliss is normal is going to waste a lot of time running around shouting that he's been robbed. Life is like an old time rail journey...delays, sidetracks, smoke, dust, cinders, and jolts, interspersed only occasionally by beautiful vistas and thrilling bursts of speed. The trick is to thank the Lord for letting you have the ride.--Gordon B. Hinckley
Friday, December 29, 2017
Thursday, December 14, 2017
Rachel's 1st Dance Recital
Rachel's 1st dance recital. Thank you Noelle Larson for giving our girls such an awesome experience and for being such an amazing Sunbeam teacher to Nate!
Labels:
Ataxia-Telangiectasia,
Rachel's Story
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