Sunday, March 20, 2016

Frustrating Medical Experiences

Some of the frustrating experiences that we have experienced on our journey:

1. Hospital stay in Ogden. Got home from the hospital and ended up back in the hospital. We were sent home sick and had been given insufficient fluids.

2. Hospital stay in Malad. After 4 days of fasting was given a liquid diet the first night and waffles and egg for breakfast and Chicken and rice for lunch. Was readmitted to the hospital that evening.

3. ER visit in Malad. Dr. took 30 min. to come into the emergency room for pain control and walked in pronouncing "are you going to listen to me this time?" We were essentially bullied into having his gall bladder taken out and were held "hostage" at Portneuf. There would be no peace for us until we had this surgery. This is the same doctor who had my normally non-emotional husband call me crying and in tears when he tried to explain to her that we thought we had been poisoned by toxic molds and that was the root of our problem and she basically called him a stupid idiot and told him that he needed to get his gall bladder out.

4. Tried telling doctors about our exposure to toxic mold and my suspicion that that exposure was the root of Larry's pancreatitis. Everytime we were admitted to the hospital I would bring all of my papers and documentation and not one doctor would look at this information. I had one doctor run an aspergillus test that came back negative. They would sometimes listen to our story to be nice, but never asked further questions, asked to see our paperwork, or did any kind of investigation.

Tuesday, March 1, 2016

Rachel's Make-A-Wish Trip

Rachel's wish came true. Special thanks to Disney World and Make a Wish foundation.